Six months ago after developing a rash and a fever which doctors initially thought was Dengue Fever, a virus transmitted by mosquitoes, I was rushed into hospital and after a week of being tested for over a hundred different viruses, I was diagnosed with a very rare auto immune illness (affecting just five in a million people) where my body is attacking it’s own muscles.

Since then I’ve either been lying in a hospital bed, barely able to raise my head from the pillow, or at home too weak from muscle loss and doped out on drugs to be able to let you know why I haven’t written a newsletter since early December.

Thanks to some powerful new medication which I have to take just once a week (though I take plenty of other drugs the rest of the week) I’ve finally got the energy to write about it. Read more