Feeling sad today

kate wileyMy lovely daughter Kate has just left Australia to live permanently in England. Moving from Melbourne which is rated as the 2nd most livable city in the world (after Vancouver) to live near London, rated 53rd in the world.

And it’s partly my fault she’s gone because I gave her the wanderlust ( and a love of England and old country houses ) when she was 10, by taking her on her first overseas trip to visit my old family home, The Deer Park, in Yorkshire. Read more

A talk with Joe Robson

joe robson in wakefield pubFarewell Joe Robson

I was so sad to find that my old mate Joe (famous for his newbieclub site, and his ‘Make Your Words Sell’ book) had passed away after a long illness. This is one of the few videos of Joe known to exist. And rather than a smooth, slick interview type video, this is more like two friends having a natter about what they do online. It’s unedited, and long.

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From a hospital bed

Six months ago after developing a rash and a fever which doctors initially thought was Dengue Fever, a virus transmitted by mosquitoes, I was rushed into hospital and after a week of being tested for over a hundred different viruses, I was diagnosed with a very rare auto immune illness (affecting just five in a million people) where my body is attacking it’s own muscles.

Since then I’ve either been lying in a hospital bed, barely able to raise my head from the pillow, or at home too weak from muscle loss and doped out on drugs to be able to let you know why I haven’t written a newsletter since early December.

Thanks to some powerful new medication, I’ve finally got the energy to write about it.

Read more here: short version or the long, rambling version

From my hospital bed – long, rambling version

Six months ago after developing a rash and a fever which doctors initially thought was Dengue Fever, a virus transmitted by mosquitoes, I was rushed into hospital and after a week of being tested for over a hundred different viruses, I was diagnosed with a very rare auto immune illness (affecting just five in a million people) where my body is attacking it’s own muscles.

Since then I’ve either been lying in a hospital bed, barely able to raise my head from the pillow, or at home too weak from muscle loss and doped out on drugs to be able to let you know why I haven’t written a newsletter since early December.

Thanks to some powerful new medication which I have to take just once a week (though I take plenty of other drugs the rest of the week) I’ve finally got the energy to write about it. Read more

Dermatomyositis

Six months ago after developing a rash and a fever which doctors initially thought was Dengue Fever, a virus transmitted by mosquitoes, I was rushed into hospital and after a week of being tested for over a hundred different viruses, I was diagnosed with a very rare auto immune illness (affecting just five in a million people) where my body is attacking it’s own muscles.

Since then I’ve been in and out of hospital. Initially for a month, then frequent return trips when I’ve developed infections including two bouts of pneumonia. Or lying in bed at home too weak from muscle loss and doped out on drugs to be able to let you know why I haven’t written a newsletter since early December. Read more